The Silver Lining To My PUPPS Nightmare

Everything happens for a reason

….or so people say.

I had always longed to be a mother. I dreamed of pregnancy, a little baby bump, and a group of like-minded women to with whom to hang out and help raise our little ones in friendship, unicorns, and rainbows.

grayscale photo of two woman showing tummies

What a wonderful portrait of “what to expect when you are expecting”… am I right? In fact, we even joked amongst the four of us here at Real As A M*ther that I would be the one with half a dozen kids and a goofy husband that made me endlessly laugh until I cried and doted on me daily. Perfection.

DSC01327So when my wonderfully hilarious, awesome, doting husband and I got married, it was natural for me to not want to wait to start this family I’d been craving. By the blessed powers that be, within 6 months I had the exciting news to tell my friends and family…..

I experienced the normal first pregnancy woes in the beginning. Morning sickness, nausea, food aversions, being super tired, and reallllllly missing wine. But overall, things were looking great. We relocated to a town outside of the city, and my husband hand-made the baby’s crib and dresser.

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I mean, the man is hilarious, awesome, and talented. What can I say?

When I was about four months along, we went to visit Christiana, who was living in Japan! It was an amazing, globe-trotting, babymoon trip where my tiny baby belly began to show while posing for picturesque photos overlooking Japanese pagodas. Pregnancy dreams, on. track.

When we got home, however, life threw my dream a giant curveball. I was on a walk around town, when my calves began to itch. I sat down at our quaint town hall fountain and saw that it looked as though I had been bitten by 30 mosquitos simultaneously. I just chalked it up to summer, and maybe… heat rash?  But the itching persisted.

Within two weeks, it had spread. My inner thighs, underarms, and belly had broken out in a rash. It felt as though I had just slept in a den of mosquitos and chiggers. After calling my midwife, I started taking some liver cleansing teas/supplements. I got some special soaps to help calm it down, and tried oatmeal baths. Nothing helped. Not. A. Thing.

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Post Biopsy

I was about 20 weeks along when I saw a specialist that, along with my midwife, decided after bloodwork and a biopsy and although it rarely occurs this early, that I had PUPPPS.

Like many of you right now, I had this reaction.

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‘da heck d’you just say?

According to Healthline.com, “Pruritic urticarial papules and plaques of pregnancy (PUPPP) rash is an itchy rash that appears in stretch marks of the stomach during late pregnancy.”

Stretch marks, you say? I was 18 weeks! I hadn’t barely even begun to show, much less stretch. And this was systemic, not on my belly! But, at least I had some sort of explanation that calmed me down. Thinking, ok now let’s get rid of this mess, I said,

“Ok, doc, what can I do?”

“Well, the only cure, is delivery” <heart sinks>

So basically, what I was being told was this: I was going to itch like this for 20 more weeks. 

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20 Weeks: just the beginning

4 more weeks went by, which felt like an eternity. The rash got so bad that I could not sleep, eat, or even wear clothes. I had to take cool/cold showers because the heat would spread the rash to a new area, which I kept finding out the hard way as it spread all over my body. It was on the soles of my feet, palms of my hands, even in my nail beds and on my eyelids. The longest I went without solid sleep was 7 whole days. I don’t even remember if I was hungry.

I, did, however, hold tightly onto the fact that I needed to drink water. I remember having thoughts of “I don’t want the amniotic fluid to get low, and that be the reason I have to get a C-Section,” which was a huge fear for me. That was the only coherent thought I remember having during this time.

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It was when my mom found me naked on my kitchen floor at 24 weeks (I was lying there because it was cool and clothes made the itching turn to burning pain) that she scooped me up and into the car. I have no recollection of this event, but she took me to the doctor and demanded an appointment right then and there. I had lost 20 pounds, the baby wasn’t gaining any weight, and I was put under the care of a neonatal specialist. I was delusional, depressed, suicidal, and covered in what looked like oozing poison ivy.

At this point, desperation kicked in, (mostly from my husband and parents because I had checked out) and a steroid regimen was put into place. I was on Prednisone until my 30th week and experienced so much relief. The rash was kept at bay and the baby was monitored regularly to make sure the medicine didn’t cause any problems.

Thinking I was in the clear, I weaned off my medication because I was so worried about steroids affecting the baby. Around Thanksgiving, however, it came back with a vengeance. At it’s worst, I could literally peel the layers of my skin off with a tissue. I immediately started the steroids again, and the rash was mostly cleared up in about two weeks.

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Belly scarring at 37 weeks

When I went into labor at 37 weeks and 6 days, I had such relief. Where most women are fearful of the unknown, I was prepared and ready for the natural pain and hormone release I had learned about through my teacher of The Bradley Method.

Most of me has forgotten about just how incredibly difficult that pregnancy was. In fact, I am only reminded when I have bad cycles now, because the rash creeps back up under my upper arms and on my legs, raised and irritated ghost shadows of such a dark time in my life.

We still don’t know what causes it. But, some risk factors for developing PUPPPS are:

  1. Carrying a boy: we didn’t know at the time but…check
  2. Being Caucasian: check
  3. First pregnancy: check
  4. Maternal hypertension: undiagnosed but with no sleep…check
  5. Multiples
  6. Rapid or higher than usual weight gain

While I did not fit into the category of the last two risk factors, my mind got to thinking about why my personal case was so different. The only reason I came up with, ties back to the beginning of this post. Because… everything happens for a reason.

It was through this tough and terrible time that I learned about prenatal herbal supplements, and how and why they work. I learned a valuable lesson in the blend of a cooperative maternal care team, and their strategies for helping. I learned the importance of relying on medical intervention, because it saved my life, my son’s life, and my sanity. But the most important gift this experience gave me was the fact that I knew I wanted to help support other women through pregnancy and birth.

I tell this story because it is important to look back and find gratitude in the lessons we are given in this lifetime. Even though I did not know this going through it, I am certain that this time of suffering gave birth to the compassion for women in their childbearing years that I had never known was inside of me. It gave me the tools for empathy that one can only develop while in the depths of great personal struggle.

DSC01829.jpgNow, I feel healing each time I help a woman accept and trust in her body through the pregnancy process. I am energized by watching her awaken to the power within her, and I am both blissfully honored and overwhelmed each time I watch her hold her baby. Because no matter what type of pregnancy, what kind of prenatal education we choose, how or where we labor and birth, or what the birth outcome is, I am reminded in that moment, women are bound together as one. And that is my most ultimate, and ever-present, silver lining.

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Kristy is a certified massage therapist, doula, homesteader and mother to 2 kids in Virginia.

Published by

Real As A M*ther

Four girls became best friends in high school and have stayed together through a whole lot of life. We are now a doctor, a lawyer, a financial advisor and a badass doula slash massage therapist and homesteader and want to share what we've learned as wives, moms, women and in our careers with the world... and entertain you along the way!

2 thoughts on “The Silver Lining To My PUPPS Nightmare

  1. Incredible story, Kristy! Glad you persevered, and delivered a healthy baby boy! Hooray for your mom too!! I loved the realization of gratitude after the pregnancy was over. Awesome to recognize gratitude with its many different faces. Xo

    Like

  2. I remember miserable you were, Kristy. I mean, you grabbed the wire brush for our cat to scratch those fu*king bumps, because nothing else would satisfy the itch.

    The ONLY thing that we discovered that would help in any way, after weeks of scouring the web for a cure, was a soap from Rainier Soap Company. I just searched for them and they have apparently changed their name:
    https://puppprelief.com/

    I remember it giving Kristy at least a little bit of relief, and some sanity.

    Liked by 1 person

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